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Jillian's Journey

Jillian Rogers was diagnosed with Cystic Fibrosis (CF) shortly after birth in 1991. At this time the age expectancy for child born with CF was 31 years old. Today, in 2023, the median life expectancy is 50 years old. Cystic Fibrosis requires a tremendous amount of responsibility and discipline as it requires daily treatment adherence such as oral antibiotics, enzymes, special vitamins, nutritional supplement drinks, breathing treatment and chest physiotherapy and much more.

 

Growing up, Jillian was a very active and outgoing person.

She enjoyed playing sports such has basketball, softball and

track in high school. She was frequently hospitalized with lung

infections, and treated with intravenous antibiotics,

this was often called a "tune-up", that required a 7-10 day hospital stay.

Despite the burdens of CF, Jillian was always positive, happy, and kind to others.

She loved to spend time helping her family and friends. 

In 2017, with the encouragement of friends and family, Jillian turned the fundraising team, Jillian's Jay Walkers, into a Nonprofit Organization that would serve the Cystic Fibrosis Community.

In the summer of 2019, at age 29 years old, Jillian had  reached End-Stage Lung Failure and needed a double lung transplant to survive life. This was a new chapter in Jillian's life that her, nor her family, had ever anticipated nor were prepared for. Jillian's CF doctors and nurses hadn't prepared Jillian or her family for such an event. Jillian had to do almost a 6 month pre transplant work up for the University of Michigan, where she was to receive her life-saving surgery. The pre-transplant phase was very tough, mentally, emotionally and physically for her and her family. It consisted of a lot of doctor appointments, lab work, and multiple medical tests and pondered. to ensure that Jillian could with stand the surgery.

 At the Jillian's Jay Walkers 2019 Bowling for A Cure fundriasing event, Jillian, her family and friends raised over $6,000 in proceeds that unknowingly, would be used to help Jillian with her living expense during her transplant journey. At this time, Jillian had to leave her job and career as side, to focus on her health.On April 1st, 2020, Jillian was put on the UNOS national organ transplant data base, where she received a "score" which placed her in a register donor bank, until a donor match was found. 

On August 28th, 2020, Jillian and her family had received the call that they had so desperately been waiting for as Jillians weight has dropped to 89lbs and a lung function of 13%. Jillian's life saving surgery was completed at the University of Michigan and took about 15 hours. Due to the Covid=19 pandemic, family and friends could not be with Jillian during recovery. 

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