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Jillian's Story

Jillian Rogers was diagnosed with Cystic Fibrosis (CF) shortly after birth in 1991. At this time the age expectancy for child born with CF was 31 years old. Today, in 2023, the median life expectancy is 50 years old.

Cystic Fibrosis requires a tremendous amount of responsibility and discipline as it requires daily treatment adherence such as oral antibiotics, enzymes, special vitamins, nutritional supplement drinks, breathing treatment and chest physiotherapy and much more.

Growing up, Jillian was a very active and outgoing person.

She enjoyed playing sports such has basketball, softball and

track in high school. She was frequently hospitalized with lung

infections, and treated with intravenous antibiotics,

this was often called a "tune-up", that required a 7-10 day hospital stay.

Despite the burdens of CF, Jillian was always positive, happy, and kind to others.

She loved to spend time helping her family and friends. 

In 2017, with the encouragement of friends and family, Jillian turned the fundraising team, Jillian's Jay Walkers, into a Nonprofit Organization that would serve the Cystic Fibrosis Community. In 2020, Jillians Jay Walkers became a registered 501(c)3 Charitable Organization.

In the summer of 2020, at age 28 years old, Jillian had finally reached End-Stage Lung Failure and needed a double lung transplant to survive life. This was a new chapter in Jillian's life that her, nor her family, had ever anticipated. 

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September 2019-
The Start of Trikafta

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January 2020-
Pre-Transplant 

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September 2020-
Post Transplant

 

Jillian Post Transplant in September 2023
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